Blogging 24 for Cure Autism Now

On July 26th, I'll be participating in Blogathon2003 at my home site at Wampum, with all proceeds going to CAN. If you'd like to sponsor me, please check out the details here.  ¶ 11:47 AM posted by MB |

  Families of disabled children face huge fee hikes

MEDICAL ASSISTANCE:Critics say the changes are an attempt to force participants to drop out of the program.
ASSOCIATED PRESS
Posted on Fri, Jun. 06, 2003

MINNEAPOLIS - Minnesota families covered by a state medical assistance plan for disabled children are getting bad news this week -- letters telling some parents about fee increases of more than 1,000 percent.

The Department of Human Services is telling more than 4,000 families they will have to pay more for the supplemental insurance that covers such things as wheelchairs and personal care aides.

Don Sparks of Ramsey saw the medical assistance co-pay for his daughter Lacie, who is 14 and has autism, go from about $100 a month to $454.

The news was similar for Steven Schmidt of Rochester, who was paying $25 a month for his son Nathan, a 14-year-old who has cerebral palsy and substantial developmental delays. His new monthly bill will be $345 -- nearly 13 times higher than his old bill.

"I'm not speaking out in terms of 'woe is me,' " Schmidt said. "But everyone said there'd be a little pain for all of us, and this is a lot of pain."

State legislators who supported the fee increase as one of several solutions to resolving the state's $4.23 billion deficit say that it just shifts more of the cost to families who can afford it, and that other vulnerable groups took worse hits.

Opponents say that it hits middle-class families unfairly, and that it could jeopardize a program that was set up to help parents keep disabled children at home instead of in institutions. (more)

  ¶ 2:14 PM posted by MB |

  It's spreading!

Welcome to the The Schafer Autism BLOG, companion to the widely read Schafer Autism Report.

Perhaps one of us needs to rethink our template :-). But then, it fits with the affinity for consistency in which our kids revel.  ¶ 7:21 AM posted by MB |

 
Parent dismayed with Tories' inaction on autism

Jun 2 2003 01:43 PM EDT

MONCTON - The parent of an autistic child says he's planning to vote against the Tories on election day as a protest against the government's failure to provide adequate therapy for his child.

Michael Pugsley says a study in California gave new hope to him and other parents of autistic kids. He says the study suggested a form of therapy called applied behavioral analysis had a stunning success rate. He says 43 per cent of children in the research improved to the point where they were indistinguishable from non-autistic children.

Pugsley says he wasn't surprised when a government committee here recommended funding the therapy.

But he says Family and Community Services Minister Joan MacAlpine has ignored the recommendation. "Her own report recommends ABA and it's my understanding that she doesn't support ABA because she thinks it's hocus pocus. Her own study, she signed off on it."

MacAlpine's boss, Premier Bernard Lord, says his government has done more than previous governments to help autistic children and their families. "We have made an investment of $2.8 million more in this budget, which is the single largest new investment for autistic children this province has ever seen."

But Lord didn't say how much, if any of the new money would go to support the therapy Pugley's child needs.

  ¶ 3:36 PM posted by MB |

  NBC Hosts Night of Too Many Stars, May 31st.

The Night of Too Many Stars comedy show was the highlight of the Autism Coalition's benefit event in February 2003 in New York City. This event raised over $1.5 million for autism research and education programs. During the May 31st NBC broadcast (8pm Eastern; check local listings), several public service announcements will air that educate viewers about autism and promote the Autism Coalition website and a toll free telephone number for viewers to support our cause and learn more about autism.

More information here.  ¶ 2:10 PM posted by MB |

  SARS threatens to close China's only school for ABA training.  ¶ 1:04 AM posted by MB |

  Court rules Ontario must fund boy's autism therapy


FROM CANADIAN PRESS

A 6-year-old central Ontario boy has won a court decision requiring the provincial government to continue funding his treatment for autism.

Andrew Lowrey of Orillia was diagnosed with the serious and disabling neurobehavioural syndrome when he was 4 years old.

The Ontario government funds intensive behavioural intervention (IBI) therapy for autistic children at a cost of about $50,000 per child per year. However, the funding ends when the child turns 6.

Andrew's parents, David and Maureen Lowrey, challenged the funding cut-off as age discriminatory and contrary to the Canadian Charter of Rights and Freedoms.

On April 11, 2003, Justice Arthur Gans of the Superior Court of Justice granted a temporary injunction compelling the government to continue funding the boy's therapy even though he had reached 6 years of age.

The injunction was to remain in place until Andrew's lawsuit was decided on its merits or until the judgments in similar cases were released later this year.

Justice George Lane dismissed the government's appeal of that decision today.

"Our family is ecstatic, overjoyed and relieved," David Lowrey said in a release.

"Many autistic children can be cured of autism, if they get IBI treatment early enough and long enough. Andrew was late entering IBI therapy, but his progress was truly exceptional and his prognosis is excellent."

"This is a great decision for Andrew, and for other autistic children," said Patrick Lassaline, one of several lawyers representing Andrew in his legal challenge.

This may be the last legal challenge for the boy, said the lawyer who argued Andrew's motion before Lane.

"Similar cases are currently being heard in the Ontario Superior Court of Justice and decisions may be rendered later this year. The outcome in those cases will likely determine the law on a final basis, subject to any appeals," said Robert Durante.

"Although those decisions will impact Andrew's case, hopefully Andrew's IBI treatment will have run its intended therapeutic course by that time."

  ¶ 12:56 PM posted by MB |

  Damian's Birthday!  ¶ 3:21 PM posted by MB |